... | ... | @@ -41,12 +41,12 @@ This page lists key concepts and terminology related to the PEP system, and prov |
|
|
| pseudonym | | An identifier that uniquely denotes data, but is not otherwise associated with a real-world entity. Pseudonyms are applied to allow data manipulation without needing to divulge sensitive (e.g. personally identifying) information. |
|
|
|
| [pseudonymization](Pseudonymization) | | The application of pseudonyms to data, making it difficult or impossible to associate information with a particular person or real-world entity. |
|
|
|
| registration | | The addition of a new row to PEP in such a way that certain cells are initialized with appropriate data. Participants are usually registered using the `pepAssessor` application. |
|
|
|
| Registration Server | RS | A server that can add new rows to PEP, initializing the row's cells to appropriate values. RS can ensure that participants have a full set of unique short pseudonyms (SPs), and that associated EDC records are created as needed. It also keeps a backup of SP values for recovery in the event of catastrophic data loss. |
|
|
|
| Registration Server | RS | A server that can add new rows to PEP, initializing the row's cells to appropriate values. In particular, RS can ensure that participants have a full set of unique short pseudonyms (SPs), and that associated EDC records are created as needed. It also keeps a backup of SP values for recovery in the event of catastrophic data loss. |
|
|
|
| research assessor | assessor | A person that takes measurements from (academic research) subjects. The `pepAssessor` application is primarily aimed at this type of user. |
|
|
|
| role | | Synonym for "access group". |
|
|
|
| row | | A [data structuring](Data-structure) primitive associated with a single entity or data subject. Rows are referred to by their [identifiers](Pseudonymization#identifiers-in-pep). The term "participant" is sometimes used as a synonym. |
|
|
|
| [short pseudonym](https://gitlab.pep.cs.ru.nl/pep-public/user-docs/-/wikis/Pseudonymization#short-pseudonyms) | SP | An identifier for a piece of data not stored in PEP. Usually these are non-digital specimens such as biosamples taken during medical research. The identifier is stored in PEP, allowing the external specimen to be associated with the PEP row. |
|
|
|
| Storage Facility | SF | The PEP server responsible for data storage and retrieval. SF may delegate raw (bulk) storage handled to other (e.g. third party and/or cloud) storage services. |
|
|
|
| Storage Facility | SF | The PEP server responsible for data storage and retrieval. SF may delegate raw (bulk) storage handling to other (e.g. third party and/or cloud) storage services. |
|
|
|
| table | | The conceptual structure of PEP's storage, in which rows refer to data entries (participants or subjects) and columns to different types of data (or separate measurements). |
|
|
|
| ticket | | Proof of authorization to access specific data stored in PEP. Issued by (a combination of) Access Manager and Transcryptor, users must present their tickets to Storage Facility to gain access to data. |
|
|
|
| Transcryptor | TS | A PEP service that cooperates with Access Manager (AM) to issue data access [tickets](Access-control#tickets). |
|
... | ... | |