Update Glossary authored by Kai van Lopik's avatar Kai van Lopik
This page lists key concepts and terminology related to the PEP system, and provides concise descriptions of each term. Follow hyperlinks to find out more.
| Concept | Description |
| ------- | ----------- |
| Access Administrator | The PEP role responsible for [data access management](Access-management#data-access). |
| access group | A named group of users that can be [authorized](Access-management) for specific actions. Also called a "role" in the system. |
| assessor | A person that takes measurements from (academic research) subjects. The `pepAssessor` application is primarily aimed at this type of user. |
| blending | The combination of several data sets into a single, larger data set. |
| Concept | Abbreviation | Description |
| ------- | ------------ | ----------- |
| Access Administrator | AA | The PEP role responsible for [data access management](Access-management#data-access). |
| access group | | A named group of users that can be [authorized](Access-management) for specific actions. Also called a "role" in the system. |
| assessor | | A person that takes measurements from (academic research) subjects. The `pepAssessor` application is primarily aimed at this type of user. |
| blending | | The combination of several data sets into a single, larger data set. |
| [Castor](https://www.castoredc.com/electronic-data-capture-system/) | An Electronic Data Capturing (EDC) system that PEP integrates with. |
| cell | The intersection of a column and a row, usable to store a single piece of data associated with a single participant. |
| column | A data structuring primitive associated with a single type of data, or with a single measurement. Columns are referred to by their names. |
| download | The act of retrieving data from PEP. |
| Data Administrator | The PEP role responsible for [data structuring](Data-structure) and management. |
| EDC | Acronym for `Electronic Data Capturing` system: third-party software used to gather and store data, e.g. from academic research study subjects. PEP provides out-of-the-box integration with the [Castor EDC](https://www.castoredc.com/electronic-data-capture-system/). |
| encryption | A technique to make information readable only to parties that are in possession of an associated secret. |
| identifier | A piece of information that uniquely denotes a single piece of data. The polymorphic pseudonym (PP) is PEP's primary [identifier type for rows](https://gitlab.pep.cs.ru.nl/pep-public/user-docs/-/wikis/Pseudonymization#identifiers-in-pep). |
| local pseudonym (LP) | A row identifier that is unique to an access group. Different access groups use different local pseudonyms to refer to the same row. |
| participant | A subject in an academic research study. The term is commonly used in PEP software and documentation as a synonym for a data row. |
| [participant identifier](https://gitlab.pep.cs.ru.nl/pep-public/user-docs/-/wikis/Pseudonymization#participant-identifier) | A fixed (non-polymorphic) identifier associated with a single PEP row. |
| PEP | A data storage system that provides polymorphic encryption and pseudonymization. |
| pepAssessor | A GUI application used for the registration, lookup and management of (academic research) subjects whose data are stored in PEP. Primarily intended for use by research assessors. |
| polymorphic pseudonym (PP) | A row identifier that is partially randomized. While any PP refers to a single row, a row is not uniquely associated with a single PP. |
| pseudonym | An identifier that uniquely denotes data, but is not otherwise associated with a real-world entity. Pseudonyms are applied to allow data manipulation without needing to divulge sensitive (e.g. personally identifying) information. |
| [pseudonymization](Pseudonymization) | The application of pseudonyms to data, making it difficult or impossible to associate information with a particular person or real-world entity. |
| registration | The addition of a new row to PEP in such a way that certain cells are initialized with appropriate data. Participants are usually registered using the `pepAssessor` application. |
| role | Synonym for "access group". |
| row | A data structuring primitive associated with a single entity or data subject. Rows are referred to by their identifiers. |
| [short pseudonym](https://gitlab.pep.cs.ru.nl/pep-public/user-docs/-/wikis/Pseudonymization#short-pseudonyms) (SP) | An identifier for a piece of data not stored in PEP. Usually these are non-digital specimens such as biosamples taken during medical research. The identifier is stored in PEP, allowing the external specimen to be associated with the PEP row. |
| table | The conceptual structure of PEP's storage, in which rows refer to data entries (participants or subjects) and columns to different types of data (or separate measurements). |
| upload | The act of storing data in PEP. |
| user | A person that interacts with the PEP software. |
| user pseudonym | An abbreviated form of the local pseudonym. |
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| cell | | The intersection of a column and a row, usable to store a single piece of data associated with a single participant. |
| column | | A data structuring primitive associated with a single type of data, or with a single measurement. Columns are referred to by their names. |
| download | | The act of retrieving data from PEP. |
| Data Administrator | DA | The PEP role responsible for [data structuring](Data-structure) and management. |
| Electronic Data Capturing system | EDC | Third-party software used to gather and store data, e.g. from academic research study subjects. PEP provides out-of-the-box integration with the [Castor EDC](https://www.castoredc.com/electronic-data-capture-system/). |
| encryption | | A technique to make information readable only to parties that are in possession of an associated secret. |
| identifier | ID | A piece of information that uniquely denotes a single piece of data. The polymorphic pseudonym (PP) is PEP's primary [identifier type for rows](https://gitlab.pep.cs.ru.nl/pep-public/user-docs/-/wikis/Pseudonymization#identifiers-in-pep). |
| local pseudonym | LP | A row identifier that is unique to an access group. Different access groups use different local pseudonyms to refer to the same row. |
| participant | | A subject in an academic research study. The term is commonly used in PEP software and documentation as a synonym for a data row. |
| [participant identifier](https://gitlab.pep.cs.ru.nl/pep-public/user-docs/-/wikis/Pseudonymization#participant-identifier) | | A fixed (non-polymorphic) identifier associated with a single PEP row. |
| Polymorphic Encryption and Pseudonymization | PEP | A data storage system geared toward security and preservation of privacy and confidentiality. |
| pepAssessor | | A GUI application used for the registration, lookup and management of (academic research) subjects whose data are stored in PEP. Primarily intended for use by research assessors. |
| polymorphic pseudonym | PP | A row identifier that is partially randomized. While any PP refers to a single row, a row is not uniquely associated with a single PP. |
| pseudonym | | An identifier that uniquely denotes data, but is not otherwise associated with a real-world entity. Pseudonyms are applied to allow data manipulation without needing to divulge sensitive (e.g. personally identifying) information. |
| [pseudonymization](Pseudonymization) | | The application of pseudonyms to data, making it difficult or impossible to associate information with a particular person or real-world entity. |
| registration | | The addition of a new row to PEP in such a way that certain cells are initialized with appropriate data. Participants are usually registered using the `pepAssessor` application. |
| role | | Synonym for "access group". |
| row | | A data structuring primitive associated with a single entity or data subject. Rows are referred to by their identifiers. |
| [short pseudonym](https://gitlab.pep.cs.ru.nl/pep-public/user-docs/-/wikis/Pseudonymization#short-pseudonyms) | SP | An identifier for a piece of data not stored in PEP. Usually these are non-digital specimens such as biosamples taken during medical research. The identifier is stored in PEP, allowing the external specimen to be associated with the PEP row. |
| table | | The conceptual structure of PEP's storage, in which rows refer to data entries (participants or subjects) and columns to different types of data (or separate measurements). |
| upload | | The act of storing data in PEP. |
| user | | A person that interacts with the PEP software. |
| user pseudonym | | An abbreviated form of the local pseudonym. |
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